September 15, 2009
Last week our daughter had an MRI to find out why she always looks to her right. She had a general stiffness to the limbs on the left side of her body and appeared to struggle to make voluntary sounds. I had them give me a copy of the MRI on CD-rom because I could not stand the week long wait to find out if something was wrong.
After seeing the MRI, I knew that something was horribly wrong. Nearly the entire right hemisphere was missing. I spent some time on the medical floor at the BYU library researching the condition and probably 5 times the amount of time reading papers, seminars and ebooks online.
So our consultation was on the 15th. And all of my research proved to be true.
Our 4 month old daughter has cerebral palsy. Currently she excellent control of her arms and legs, although the left side is indeed stiff requiring frequent stretching and massaging.
We are, in short, devastated. I go from being happy to have a beautiful baby girl and being rendered a sobbing jangle of nerves.
Not sure where to go from here and we’re all feeling a little lost.