Skip to content

September 15, 2009

September 16, 2009

Last week our daughter had an MRI to find out why she always looks to her right. She had a general stiffness to the limbs on the left side of her body and appeared to struggle to make voluntary sounds. I had them give me a copy of the MRI on CD-rom because I could not stand the week long wait to find out if something was wrong.

After seeing the MRI, I knew that something was horribly wrong. Nearly the entire right hemisphere was missing. I spent some time on the medical floor at the BYU library researching the condition and probably 5 times the amount of time reading papers, seminars and ebooks online.

So our consultation was on the 15th. And all of my research proved to be true.

Our 4 month old daughter has cerebral palsy. Currently she excellent control of her arms and legs, although the left side is indeed stiff requiring frequent stretching and massaging.

We are, in short, devastated. I go from being happy to have a beautiful baby girl and being rendered a sobbing jangle of nerves.

Not sure where to go from here and we’re all feeling a little lost.

mri

8 Comments leave one →
  1. IPoopedMyPants permalink
    March 7, 2011 6:23 am

    >We are, in short, devastated. I go from being happy to have a beautiful baby girl and being rendered a sobbing jangle of nerves.

    And now at 22 months, you seem to be happy and proud of your beautiful baby girl.

    I only wish I had a time machine to have been able to tell you this in September of 2009, but either way, your family has done extremely well.

  2. Tanner permalink
    March 7, 2011 7:23 am

    Hi there. Just saw your post on reddit. Thought I would stop a moment to write and say how sorry I am for your heartbreaking discovery. With 4 children of my own I can’t even begin to imagine how one could even cope with such devastating news. From the video, though, it looks like you all have made amazing progress with her being able to take her first few steps! That is nothing short of amazing. Period. I know you all have a very long road ahead, but just “keep that chin up” and “keep on keepin’ on”. Take it one day at a time. Don’t concentrate on the future, instead, live in the moment and savor every minute of it. If we’re always concerned about what the future may bring, our entire life will pass before our eyes.

    I wish you all the best and look forward to seeing more positive posts on reddit!

    Respectfully,
    Tanner M.

  3. Steve permalink
    September 7, 2012 4:04 pm

    Aloha from Hawaii

    I too have a child stricten with cerebral palsy. He is now 42 years old and my wife and I am blessed to have him. We grew together as a family and never looked back. This is a verse some one gave us when we found out he was stricken with cerebral palsy. Hope it helps you realize how special you are.

    Heaven’s Very Special Child

    A meeting was held quite far from earth
    “It’s time again for another birth”
    Said the angels to the Lord above,
    “This special child will need much love.”
    His progress may seem very slow
    Accomplishments he may not show
    And he’ll require extra care
    From the folks he meets way down there.
    He may not run or laugh or play
    His thoughts may seem quite far away
    In many ways he won’t adapt
    And he’ll be known as handicapped
    So let’s be careful where he’s sent
    We want his life to be content
    Please, Lord find the parents
    who will do a special job for you.
    They will not realize right away
    The leading role they’re asked to play
    But with this child sent from above
    Come stronger faith and richer love.
    And soon they’ll know the privilege given
    In caring for this gift from heaven.
    Their precious charge, so meek and mild
    Is heaven’s very special child.

    Aloha, Steve

Trackbacks

  1. Rya, Girl With Cerebral Palsy, Goes To School For The First Time | Test
  2. Rya, Girl With Cerebral Palsy, Goes To School For The First Time « Go to News!
  3. Rya, Girl With Cerebral Palsy, Goes To School For The First Time « News Flash
  4. Girl Born With Cerebral Palsy Inspires Thousands On Reddit | Test
  5. Girl Born With Cerebral Palsy Inspires Thousands On Reddit - Health Medicine Network

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Follow

Get every new post delivered to your Inbox.

%d bloggers like this: